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Alzheimer's and Dementia: Recognizing and Managing Wandering Behaviour.

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Indicators an individual may have Alzheimer’s or Dementia

Early recognition of wandering behaviors is essential for caregivers and loved ones to implement effective preventative measures and ensure the safety of individuals with dementia. Wandering is frequently a result of cognitive changes associated with Alzheimer’s disease and other forms of dementia, presenting in various forms, including:


  • Difficulty Navigating Familiar Places:

    • Individuals with dementia may take longer than usual to return from frequently visited locations, such as parks, stores, or a friend's home.

    • They may struggle to recall familiar routes, ask for directions to well-known places, or appear disoriented in previously familiar settings.

  • Unplanned or Unsupervised Departures:

    • The individual may leave home unexpectedly without notifying anyone, often wandering without a clear destination or purpose.

  • Persistent Attempts to Leave Home:

    • They may frequently express a desire to "go somewhere," such as returning to a previous residence or visiting someone from their past, even if such a location is no longer relevant or accessible.

  • Disorientation During Routine Activities:

    • Difficulty completing familiar tasks, such as walking the dog or running errands, may result in confusion about their location, leading to wandering.

  • Increased Agitation or Restlessness:

    • Signs such as pacing, frequently opening doors, or exhibiting anxious behaviors may indicate an urge to wander.


Reasons for Wandering in Dementia

Individuals with dementia may wander due to various cognitive, emotional, and physical factors. The following are key contributors to wandering behaviors:


  • Confusion and Disorientation:

    • Impairments in memory and cognitive function can cause individuals to forget their location, reason for being there, or how to return home.

  • Boredom and Lack of Stimulation:

    • Insufficient engagement in meaningful activities may lead to restlessness, prompting wandering as a means of seeking stimulation.

  • Unmet Basic Needs:

    • The need for food, water, or a restroom may result in wandering as the person searches for ways to meet these needs.

  • Desire for Routine or Purpose:

    • Individuals may attempt to follow past routines, such as “going to work” or visiting familiar places, in an effort to maintain a sense of normalcy.

  • Loneliness and Social Isolation:

    • A lack of social interaction can drive individuals to wander in search of companionship or familiar faces.

  • Memory Triggers:

    • Objects, sounds, or conversations that evoke past memories may prompt individuals to leave in search of people or places associated with those recollections.

  • Response to Overstimulation:

    • Loud noises, crowded settings, or unfamiliar environments may be overwhelming, leading to wandering as an attempt to find a calmer space.

  • Delusions and Misperceptions:

    • Cognitive impairments can cause individuals to misinterpret their surroundings, believing they are in a different place and acting accordingly.

  • Physical Discomfort or Pain:

    • Wandering may be an attempt to relieve discomfort or seek assistance when the individual cannot effectively communicate their distress.

  • Impaired Vision and Spatial Awareness:

    • Dementia-related visual-spatial difficulties can make navigation challenging, increasing the likelihood of unintentional wandering.

  • Fear and Anxiety:

    • Perceived threats, such as unfamiliar caregivers or new environments, may trigger wandering as an escape response.


Strategies for Preventing Unsafe Wandering


  • Structured Activity Planning:

    • Implement a daily routine with engaging activities, particularly during times when the individual is most prone to wandering.

    • Provide stimulating yet manageable tasks that promote cognitive engagement and reduce restlessness.

  • Providing Emotional Support:

    • Acknowledge and validate feelings when the individual expresses a desire to "go home" or search for someone from their past.

    • Offer reassurance and comfort to alleviate feelings of confusion, abandonment, or anxiety.

  • Addressing Basic Needs Proactively:

    • Ensure regular access to food, hydration, and restroom facilities to minimize wandering triggered by unmet needs.

    • Assess for physical discomfort or pain that may contribute to restlessness.

  • Minimizing Environmental Overstimulation:

    • Reduce exposure to crowded, noisy, or visually overwhelming environments that may cause distress or disorientation.

    • Create a calm and structured living space to enhance a sense of security and familiarity.


Safety Measures to Prevent Wandering


  • Continuous Supervision:

    • Maintain close supervision, particularly in unfamiliar settings or when traveling to new environments.

    • Never leave the individual alone in a vehicle, as this may increase confusion and risk of wandering.

    • Establish a routine for regular check-ins, especially during high-risk times of the day.

  • Use of Alarms and Locking Mechanisms:

    • Install pressure-sensitive alarm mats, door chimes, or motion detectors to alert caregivers when movement is detected.

    • Use childproof locks, doorknob covers, or key-operated deadbolts placed outside the individual's line of sight.

    • Consider installing automatic door-locking systems that engage at specific times to prevent nighttime wandering.

  • Door Camouflage and Visual Deterrents:

    • Cover exit doors with removable curtains, scenic posters, or decorative elements to reduce recognition of the doorway.

    • Use clear signage, such as "STOP" or "DO NOT ENTER," to discourage exit attempts.

    • Paint doors the same color as the walls to make them less distinguishable.

  • Securing Personal Belongings to Discourage Leaving:

    • Store car keys, wallets, shoes, coats, and other personal items in a secure, inconspicuous location to reduce triggers for spontaneous departures.

    • Offer alternative items, such as comfortable indoor footwear, to maintain comfort while discouraging the urge to leave.

    • Implement structured transitions and distraction techniques if the individual becomes fixated on leaving.


Ensuring Safe Return for Individuals at Risk of Wandering


  • Proactive Communication and Preparedness:

    • Inform local law enforcement, neighbors, and nearby community members about the individual's risk of wandering.

    • Maintain an up-to-date emergency contact list, including family members, caregivers, and medical professionals.

  • Comprehensive Documentation:

    • Keep recent photographs or video recordings readily available to assist in identification.

    • Maintain medical records, including diagnoses and medications, to provide critical information in case of an emergency.

    • Document frequently mentioned or past significant locations, such as former homes, workplaces, or places of worship, as these may be likely destinations.

  • Identification and Personal Labeling:

    • Ensure the individual wears a medical alert bracelet or carries an ID card with essential contact details.

    • Label clothing, outerwear, and personal belongings with a name and emergency contact information to aid in identification.

  • Utilization of Tracking Technology:

    • Consider GPS-enabled devices, smart watches, or location-tracking wearables designed for individuals with cognitive impairments.

    • Use tracking apps or services that provide real-time location updates for caregivers.


Action Plan for Wandering Incidents


  • Immediate Search Procedures:

    • Conduct a thorough search of the immediate surroundings for up to 15 minutes, checking common wandering paths, nearby streets, and familiar locations.

    • Call the individual’s name calmly and listen for responses, as they may be disoriented but nearby.

  • Involving Authorities and Support Networks:

    • If the person is not located within 15 minutes, contact local law enforcement and provide them with identifying details, including recent photos and known destinations.

    • Notify any loved ones, freinds or safety programs to activate their search support.

  • Ensuring a Rapid and Coordinated Response:

    • Time is critical—acting quickly significantly increases the chances of a safe and timely recovery.

    • Assign designated search roles among family members or caregivers to maximize coverage and efficiency.

    • Remain in contact with authorities and continue searching systematically until the individual is found.


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Disclaimer

The information presented in this blog is compiled from various independent industry professionals and media sources and is intended for informational and educational purposes only. While A.C.A. staff have over 35 years of experience in the aged care and disability industry, we are not medical clinicians. The content provided should not be interpreted as professional medical advice. For medical concerns, diagnoses, or treatment, always consult a qualified general practitioner (GP) or licensed healthcare professional.

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